"So do not fear, for I am with you, do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. For I am the Lord your God, who takes hold of your right hand and says to you, Do not fear, I will help you." Is 41: 10,13
I went online today and filled out a request for an appointment at Children's in DC for my little bug. I wrestled a bit between an appointment with a pediatric rheumatologist and an appointment at Children's. Fairfax is closer, DC is a pain, Children's would have a team available & is up on the latest research. So, I chose Children's, I am getting past the whole drive thing and doing what I feel is best for my bug. If this is where I am not supposed to be, then, I know that God will make that apparent with many road blocks and difficulties. Then I will go down another path. For now, I am feeling a bit of peace about it, letting God take my right hand for I know He will help us through this. Through Him, I will shed the apprehension about the future because I know He has plans to prosper us and not harm us, plans to give us hope and a future. It's funny because that is the shirt I am wearing today. :o)
This is the reason my little bug will be going to Children's: At the end of June all 10 fingertips became flame red, swollen, hot and felt like they were being stabbed. This happens now every 2 weeks and the pain is severe enough to wake her from a dead sleep. After the swelling goes down, they seem to collapse & deep cracks or crevices are all over her fingertips which is very tender and sore and then they all begin to peel.
After getting back from Illinois (it happened 2x there), it occurred again & I took her in to her doctor who ordered a bunch of blood tests and said that it looked vascular and indicated auto immune problems. This was really confirmed in her mind when I told her the family history of Lupus, MS, and Rheumatoid arthritis. She thinks my bug may have Raynaud's phenomenon and is sending us on to Children's in DC. We shall see what the doctor's have to say there. I am praying that if what is occurring is not to be broken off, that the Lord would give the doctors a Spirit of Wisdom and Revelation to get to the bottom of this and figure out the triggers and give us direction as to how to relieve the symptoms.
The blood tests came back with a low positive ANA as well as SSB. I really don't know what that means, but God is so good! He has given me family that understands what these are and can walk with me in faith, sooth my spirit and show me that there are many in the family who have these readings as well and are doing just fine. I am so blessed! My little bug however, is a bit ruffled. Her daddy had her all chatted up that she has super-powers and an ability to light things on fire with her fingertips. She really wasn't interested that others in the family have similar problems and are doing fine. She wanted to be "different". :D She cracks us all up! You never know what will come from her mouth. I do believe that there is relief at some level that the family members are living just fine & she is not going to keel over and die. (I am too!)
"Because he loves me, I will rescue him; I will protect him, for he acknowledges my name. He will call upon me, and I will answer him; I will be with him in trouble, I will deliver him and honor him. With long life will I satisfy him and show him my salvation." Psalms 91: 15-16
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