May 20, 2021 930pm
I was hoping to have doctor info to share, so I waited to put it all together, but that didn't happen. So BIG CELEBRATION!!!! Steve's BP didn't waiver a bit, it stayed solid during the whole dialysis today! That was a huge worry that he wouldn't be able to stay high enough, thank you for all your prayers!!! They were also able to get a Liter of fluid off of him! WOOOHOOOO! At this time he is on the list to repeat again tomorrow. More toxins and fluid OUT!!!
Today was a rough one, I found out that I had misunderstood what was going on. I had been able to see Steve two days in a row, well yesterday was like 90 seconds, but still. The only reason why I was "in" was because I had met with the doctors for a meeting and they allowed me to see Steve. Since Steve is still covid positive (the tests cannot tell if the covid creatures are replicable-alive- or dead) The CDC says that 95% of all critical patients don't have replicable covid, but since his covid test continues to come back positive, it is all under the discernment of the infectious disease group. The rule is NO visitors.
Dealing with disappointment and broken expectations. It was rough. I had pictured that We would get to go in and be outside his door cheering him on for a bit daily and that just won't be the case. When we have expectations in this world, they can sometimes be dashed and then disappointment, frustration, anger, sadness all set in. What do you do with that? Well, throw a pitty party. It's ok, this really really stinks, the whole situation. I struggled on and off, I called patient advocate and pushed a bit. Went back to just missing my man, but then it occurred to me to remember what happened today. Wow, he made it through something scary and big. Steve took another step toward wellness today in being able to tolerate dialysis! He is fighting so hard! He's going to do it again tomorrow which will allow him to heal more!
I have to make a decision to trust where we are and the path we have to take. I am not in control now, and never have been no matter what I might think. I have to have my mind stayed on Sometimes we have to have a stinkier day to really appreciate the blessings. The Lord, not in earthly plans or expectations. He has got Steve, and all the rest of us who love and care for him. We need to burrow into his caring arms when it hurts and it is hard. I hear a whisper "It is well with my soul", and so it is, even when it is hard and it hurts. He will never let go of me or you. He is my peace-giver, comforter, strong tower, strength, deliverer and my portion. He is enough for me in this moment. He will be enough in the next moments too.
I am so very blessed that at the last moment, I asked nurse Maria if she could put the phone to his ear. She didn't even hesitate. She had the phone with her, gowned up and put the phone by his ear so I could talk to him and pray for him. I could picture and feel my head on his chest sharing with him the day and what happened to him and praying, Kaiti and Steve's mom(on the phone) were able to talk too. What a precious gift. I am thankful for so much. Love you all, I am excited for what tomorrow will bring with more clean blood!!! All day I have been singing this today, maybe a little to much for 10pm, but this is what I need! https://youtu.be/p5Rq2_Xg1J0
Comments
- Fine HeartALL of our focus on HIM who is our Rock, our Strength, our Shield, our only REAL HOPE. Praise God for the clean blood! Praise God for Steve fighting! Praise God for you encouraging us. We love you and love reading the updates. Thank you for pouring out your heart and ministering to us for such a time as this. Blessings upon blessings to you. LOVE YOU sister!!!5/21/21
- Sara FreemanYour story is such a testimony! Thank you for sharing. We have prayed daily for your husband and you and your daughters. God is so faithful!5/21/21
- Wanda SabinAmen! We can’t control a thing even when we think we can. But we can look for the good in all we do and praise the Lord we can be here to do it.💕💕💕5/21/21
- Tracy CarlsonHeather you and all are in my prayers daily. Now prayers will focus on a negative test as well as continued healing.5/21/21
- Debby CaulfieldMy heart continually breaks for you as you are kept away from Steve. I can not imagine having not been with John all the times he was in ICU. I pray continually that soon you can caress his cheek❤️5/21/21
- Karen Mills BaileyHeather you continue to inspire all who know you. Thank you for the updates. I continue to pray for Steve, you, and family as well as the doctors and nurses. Wish I could give you a hug. ❤️5/20/21
- Jan Marie"Weeping may endure for a night, But joy comes in the morning." No doubt CLEAN BLOOD will bring renewal and restoration! Praise!5/20/21
- Victoria MizerakI love you Heather. Thank you so very much for sharing the details; of Steve’s progress and of your walk with The Lord. You encourage me a great deal and yet... hey, I’m the one who wants to encourage you!!🙃 We are near.❤️5/20/21
- Sabrina CombsI’m sorry for the disappointment. That really does stink. But we know God is ministering to Steve constantly even though you can’t be right there. We will continue to lift all of you in prayer.5/20/21
No comments:
Post a Comment